The pace of developments in genetic editing over the past two years seems fast and accelerating. What are those developments, the tough choice decisions and accompanying infrastructure that are needed to support researchers, clinicians, and ethics committee members? It may seem trite but is the key to success here better listening, inclusion of voices, and honoring the need for diversity in the human genome itself? Our guests today discussing these issues are three international experts: Damon Hostin, Fr. Kevin FitzGerald, and Michael Burgess.
Resources referenced in this episode:
- Participedia – a Participatory Process Database
- Public Deliberation Resources and Bibliography – University of Guelph
- CanEngage – a collaboration of researchers and health-care administrators that strives to facilitate public engagement in health policy decisions in Canada
- PDF – a deliberative community engagement – Biobanking at the University of California
- Australian Published Article – Blueprint for a deliberative public on biobanking policy